EOLP-04. A CALL TO ACTION TO INCREASE ACCESS TO POST-MORTEM BRAIN TUMOR DONATIONS: GIFT FROM A CHILD

Abstract Implementation of access to donate post mortem tissue among pediatric brain tumor patients remains a challenge[DSM1] . Previous attempts develop post-mortem network have been jeopardized by barriers such as lack education, logistical coordination donation, and difficulties effectively communicating the benefit donations families. [CC2] Utilizing feedback from patients’ families, clinicians, researchers, standard operating procedures (SOP) were developed utilized six “tissue navigators” (TN) working across institutions. Tissue navigators are critical in implementation they serve liaison between families clinical team ensure is procured correctly respectfully. From 2018 through 2021, there has an increase donations, which led establishment cell cultures translating rapidly development, growing centers participating GFAC procedures. Donations facilitated at over 75 coordinated 146 this 3-year launch timeframe, with nearly half outside GFAC’s primary institutional network. Barriers addressed design SOPs, lead successful donation. developing CME training for clinicians researchers address communication continuing awareness campaigns collaborators field, advocating receive on expanding SOPs more learned